Wednesday, 2 April 2014

Fight is on Again

It has been pointed out to me that I haven’t written my blog for a while so this one will have to be a bit of catching up.
I have had a week away on the Isle of Wight and managed not to disgrace myself like the last time I was there (read my 999 blog 19/4/2013).
The thing I managed to do this time was to forget one of my tablets. I had put all of them into one of those seven day dispensers so that I knew I had extras in case of an emergency. I went to get the first mornings but realized I had completely missed out one that I take twice a day and it was the same in all the boxes what an Idiot. I really dreaded admitting to my friends what I had done but to be fair they didn't make a fuss but I suspect that they also thought I was perhaps more than an idiot. That meant instead of a trip out I was chasing around to get my prescription sorted, I was a bit worried that it would be impossible for me to get them at such short notice. Thanks again to the lovely people who live on the Island I was once again sorted out.
The week before I had been asked to give a talk on Parkinson’s to the local Hospital Watch and me being me jumped in head first, the fact that it was for the same night was a little off putting so I phoned a friend. Her husband has PD and between us we help run the local support group. When she asked if I needed help I said YES. We made a remarkable team; she started by explaining what PD was, facts and figures and that sort of technical stuff. Then I explained what my life was like living with Parkinson’s, I started to stiffen up a bit which I think brought it home to everyone how difficult things can get. I had made a list which I nearly stuck to so I was very pleased that I had managed. Then it was back to my friend who explained about our lack of a Parkinson’s nurse in the area and the general feeling of being abandoned.
We were asked lots of questions which was very encouraging it meant we hadn't put everyone to sleep. We came away on a high as we felt that we may have managed to reach the right people to get the ball rolling once again in a fight to get our nurse.

So now the fight is on we need a PD Nurse.  

Tuesday, 25 February 2014

Shop on Line

I think I am beating my shingles; the intense pain I have been told that I would get seems to be bearable so that’s a few less pills to take.
I had made a graph so as not to confuse myself; of course it doesn’t help if you forget to fill the graph in. WHAT AM I LIKE?
My spots are not as aggressive now, and I didn’t wake up last night to take pain killers as I have been doing up till then.
I’m also dead chuffed with Parky; I honestly thought he would be in his element. I have even cut down on my Stalevo as I felt I had gone back to staying up late and playing games on the computer. Now that the dose has gone down there have even been a few days when I don’t turn my computer on until I want to do things like this. Yesterday I did our local groups newsletter and then turned off the computer
I’m also hoping that my appetite might improve as I often get a good way through the day and realise that not only have I not had breakfast but I have not had lunch.
Yesterday I decided I needed some food in at least if there was plenty about it might jog my memory so I did shopping on line. Looking at my order it seems that I have gone for puddings and cleaning things with some fruit thrown in for good measure. It’s not the same as wondering around the store looking for inspiration and I am wondering if the bananas I have ordered will be how I like them?


Wednesday, 19 February 2014

Pills Parky or Shingles

How do I juggle pills when I now have a load more to take, I have Shingles so I came back from the Drs armed with antibiotics and pain killers.
I am a bit confused which can be taken together, do I space them out or take them at the same time as my Parky ones????????????
The Dr was very nice he told me it would get worse before it gets better, lovely just what I wanted to hear.
How long do I keep myself away from anyone who hasn’t had Chicken Pox? If I feel bad now how bad is it going to get? That’s just a few of the thoughts going round in my head.
Then to top it all I missed my grandson’s birthday party today at the chocolate cafĂ©, how bad is that, I’m well miffed.
I had to get a friend to get me some chocolate when she went shopping to try and get over it.

Seems like I had better have an early night, I think I am feeling a little dopey, is that Pills, Parky or Shingles? 

Wednesday, 5 February 2014

Parky and Web Design

I am trying my hand at web design; our local college is doing a course on a Friday morning starting at nine.  I don’t usually get myself going as early as that so I will have to get to bed early on a Thursday night. MUST REMEMBER ALARM ON PHONE. Better put it out of reach as well so I have to get out of bed to stop it maybe change the ringtone to something very annoying and loud that should do the trick.
I had done the first week then came home to play. Never quite as you remember or should I say as I don’t remember it. I am using one of those dedicated sites, simply follow instructions and do a basic web site for my brother who has taken over our parent’s camp site; all I can say is role on the next lesson. MUST REMEMBER A NOTE PAD, and a pen might come in handy.
You are probably wondering how I managed to set this blog up if you haven’t read my very first one. It was easy my eldest daughter did it and I haven’t changed the basic bits from that day. I still have the same colour scheme and I am still sky diving, well only on the photo.
When I get going I want to do one for my local Parkinson’s group, I may even put a link on here then you will be able to see what a happy lot of Parkies we are in Skegness.

Saturday, 25 January 2014

Don't Travel With Me

Although it has been a sad time as I have been to a family funeral, I am delighted that I managed to go by train to the south of London. This meant changing trains and of course the underground. I was very confident as a very kind person on the train had looked up the root I would have to take. A piece of cake it was so simple, from Kings Cross the main line station all I had to do was find the underground, I could do that. Find the Victoria line, again no problem. Get on the train going south, well who could get that wrong? And get out at Vauxhall for the main line south.
The trouble was I hadn’t banked on the Victoria line being flooded and somehow this ended up with quick drying cement in it. Honest I am not making it up, some of the electricity wires were covered in cement. Mind you I only found this out later on the television news.
The thing is I managed and Parky didn’t interfere, how good is that? It has given me quite a boost I went to London and back by myself YIPPY. I had spent quite a while traveling all over the place on the underground as I was directed and redirected without  hardly a whisper from Parky.
The funeral went off extremely well as funerals go. It seems that funerals are the place to see old friends and in this case make new ones. I stayed with a nebour who I had never met before and was made so welcome aren’t there some lovely people about.
Talking about lovely people, three of my daughter’s friends who had obviously been primed by her also played their part in making the day easier for me. Thank you girls it was really good to see you and didn’t I warn you that you would be BLOGGED.

On my journey home the train was delayed as the police had to get on and I think they removed someone so if you want a stress free outing it would be best if you travelled at a different time to me.

Monday, 13 January 2014

Flat Pack Conundrum

I decided it was time that I updated my working area in my office. How come that by sorting one room out I end up making a mess of the rest of the place?
I sent for a flat pack desk, I really enjoy getting stuck into one. I have even volunteered to help other people so that I can get my hands on any kind of flat pack.
This one turned out to be a bit of a nightmare, I followed the instructions (not bad for me) but it wasn't fitting together as it should, I hadn't started cursing but I was very very close.
If you have ever taken on one of those flat packs you will know what I’m on about if not it may seem I am talking nuts.
There are these locking type connecting metal things for joining pieces together. Usually they are in a bag so that you can put them in the holes provided, but it seems someone decided that it would be a good idea to insert them at the same time as the hole was made. That was a very fine idea what they failed to realize some of the bits they were removing remained in the locking piece making it impossible to put the connecting bolt in.
This I found out after a lot of joining and taking apart so then I turned the place upside down looking for something to remove the pieces.
What would have taken me a couple of hours took me a couple of days.

I am sat at it now; the draws are full so is the cupboard so fingers crossed it stays together, maybe it’s a way of telling me to give up flat packs NNOOOOOOOOOOOOOOOO.

Saturday, 21 December 2013

Clickety Click 66

Another Birthday now I’m 66, which means I have been doing this blog for over three years. Who would have thought when I first sat at this computer and tried to get down on paper what was happening to me I would still be doing it now.
I have to ask myself if I have managed to do what I set out to do. I know from some incredible feedback that some people have not only enjoyed what I have written but it has also helped them in their own fight with Parky.
Parky has enabled me, turned my world upside down. I find I don’t suffer fools gladly why should I get involved with anyone who will stress me out. Maybe I use him from time to time so as to get my own way, I hope not too often.
I so enjoyed my dancing last week which was an unexpected bonus. Not sure if it was lack of stress, pills, or just bloody mindlessness. I do realize that the next time I try it may all go belly up but I will have to risk it.
I am so fortunate to have family and friends who are also coping with Parky; he is not the best of company especially when I do things that encourage him. Like forget pills or have more than one drink.
I would like to thank the people who have got in touch with me for doing just that. I sit at my computer like I have done from the beginning and prattle on in isolation its really nice to know that I am not in fact isolated at all.
So have I succeeded, my life is online in black and white and even I am amazed at what I have managed to do. From the highs of China and Peru, to the lows of Ratty and Requip, it’s all there.