Well it is the last Friday in the month so it was Parkinson’s get together day. We had a good turnout.
First it was really good to meet our new support worker, I have a feeling that she is going to be a great help to our members, I am impressed.
Then to make things go a little bit better we had a lady from Healthwatch Lincolnshire, this is an independent local organisation giving everyone a chance to “speak up” about their local health and social care services.
Boy had we got a lot to tell her, from the fact that appointments don’t seem to be set up for seeing your consultant to patients not being told that they no longer have a consultant, as he no longer works at the hospital you attend.
Worry about medication being monitored is a big concern for us all. The cocktail of drugs we are all on makes for a scary time when you get to see a consultant at best every six months.
This is a rural community and whoever we go and see means traveling, so I know it’s an old plea but doesn’t anyone think a Parkinson’s nurse would help to alleviate the problem. Clinics at doctors or small hospitals would help and I’m sure Consultants would cope better with the patients that they need to see.
I see this as a win win situation.
The best benefit of today was that the Parkinson’s Support worker met the Healthwatch worker so I hope it is a case of WATCH THIS SPACE